Navigating life with a rare disease

Nepal’s evolving national disease registries lack information on sarcoidosis.

In April 2019, during a routine check-up at a private hospital in Kathmandu, a general practitioner’s words struck me with unexpected force: “There are several small nodules in your lungs, and we need to do a CT scan as soon as possible—it could be something serious.” A whirlwind of fear and uncertainty gripped me. Seeking clarity, I consulted a lung specialist. After a series of invasive tests, I was diagnosed with sarcoidosis—a term previously unfamiliar to me.